Hope for Nicholas | Nick the Kid

Happy news… Nicholas got his first loose tooth yesterday. He is so excited! This news is especially special to me because it (among many things) was one thing I vividly remembered feeling sorrow about 2 years ago… never seeing him loose a tooth. Now I’m seeing it and I feel very blessed. He had his last day of school on tues, which was the end of a wonderful year. We couldn’t be happier with his academic and social achievements. We also have him ready for Kindergarten in the fall and he couldn’t be more excited. We’re heading to the beach this week with my family and the kids are so excited. Can’t wait! Last week we went to TN with Chris’ family to see Thomas the Train and we had a blast. As you can see, we are enjoying life to the fullest. Looking forward to more fun this summer.

Nicholas’ MRI was this morning and we just received word from the doctor that the scan
came back “unchanged “. Such great news to hear. At almost 2 years since his removal surgery and to have a scan that doesn’t show signs of cancer is a miracle in itself. We are truly blessed. Thank you for all the continued support.
Karen

Happy Easter to all. We’ve had a wonderful day with family. We hunted, did baskets, dyed eggs, and most importantly gave a whole lot of thanks for the gifts we’ve been given, health and family. Nicholas has been doing great. He had his oral chemo all last week as well as an oncologist visit and port flush on Friday. All went well and the doctor said his blood counts and overall health were excellent. We discussed further treatment options once the current regiment has reached a stopping point in July, as well as his thoughts about Nicholas progress. Again, two years without a recurrence is awesome, but new studies are saying the 4 year mark will be the big tell all. When he reaches 4 years without a recurrence, it is believed the chance it will come back is slim since its aggressiveness is so great (it would have already returned by that time) . On that note, we are at 23 months, which is miraculous in itself and a feet we felt was forever away when we first started this journey. The return rate for this cancer witnin the first 2 years is well in the 80 to 90%. So like I said, the fact that we are here with no sign of cancer at 23 months is such a blessing. Therefore again we must believe that its gone… its the only way we continue to function. Thank you as always for all the prayers you all so generously give as well as presents you send. We are very thankful.

A NICKism… we jumped in the car the other day and he says from the way back, “there’s nothing like listening to some good music while driving on a warm day “. We just thought that was the cutest, because that’s just what I use to always think, especially during my college years.

Just got the news that Nicholas’ PET scan from Tuesday looked great, no areas of concern and the scan showed as cold… just the news we needed. We are happy people today.

We’ve been home for a few hours now from Nicholas’ PET scan, but again won’t know anything about the scan for a few days. So we wait, pray, hope, and most importantly stay calm, well maybe not the last one

On another note, we are already making plans to do the Brain Tumor walk in July. The Blasting Blastomas will be returning with new shirts and new and old teammates. I’ll post more info later.

Thanks for all the prayers and well wishes.

Nicholas went to have his port flushed on Friday. All went smoothly and the doctor said he looked great. Nerves are at a high with Nicholas’ PET scan coming up next Tuesday. We won’t have any results from it until Thursday or Friday. This scan will help see the difference in the tissue, brain, scar, cancer. We are expecting a “cold” scan, no cancer, but even if there are some “hot” spots it doesn’t necessarily mean cancer, sometimes chemos and radiation can show as “hot”. So if there’s hot spots we’ll be doing another one in 6 months if no hot spots, then a year. Naturally we also be continuing on with our MRIs.

22 months out today! What a miracle my son is.

Something sweet and very Nick-like: I was putting him to bed the other night and he was lying there and talking to me and from out of the blue he says, ” mom, you know I’ve been talking to God ” naturally I was very interested in what God had to say. I said,”what did he tell you” and he says ” he wanted me to know that he made great grandma into an angel to watch over us.” Well, as you can imagine, this brought tears to my eyes. He is such a dear sweet boy.

Send a mess